Penelitian Naratif Inquiry tentang Dukungan Ibu Terhadap anak - anak dengan Cerebral Palsy Untuk Mencapai Prestasi Akademik di Homeschooling House of Knowledge
Downloads
Penelitian ini mengeksplorasi peran penting ibu dalam mendukung anak dengan cerebral palsy di lingkungan homeschooling. Meskipun banyak penelitian telah mengkaji peran orang tua dalam pendidikan anak berkebutuhan khusus, masih terdapat kesenjangan dalam literatur mengenai bagaimana ibu memaknai pengalaman mendampingi anak dengan cerebral palsy dalam konteks homeschooling, khususnya di Indonesia. Melalui pendekatan narrative inquiry, data dikumpulkan dari wawancara mendalam, observasi, dan dokumen pendukung untuk mengungkap bagaimana dukungan emosional, fisik, dan akademik ibu sangat berpengaruh pada keberhasilan anak. Penelitian ini melibatkan dua hingga tiga orang ibu yang memiliki anak dengan cerebral palsy yang bersekolah di Homeschooling House of Knowledge. Meskipun ibu menghadapi tantangan seperti keterbatasan sumber daya, stigma sosial, dan tekanan emosional, strategi yang mereka kembangkan berkontribusi signifikan terhadap perkembangan anak. Temuan utama menunjukkan bahwa dukungan ibu bersifat multidimensional dan melibatkan proses rekonstruksi emosional, scaffolding dalam pembelajaran, serta pemaknaan ulang terhadap prestasi akademik. Studi ini menyoroti peran keluarga dalam pendidikan anak dengan cerebral palsy dan memberikan wawasan untuk kebijakan pendidikan inklusif serta pengembangan program pendampingan keluarga yang lebih komprehensif.
Branjerdporn, N., Crawford, E., Ziviani, J., Boyd, R. N., Benfer, K., & Sakzewski, L. (2021). Mothers’ perspectives on the influences shaping their early experiences with infants at risk of cerebral palsy in India. Research in Developmental Disabilities, 113, 103957. https://doi.org/10.1016/j.ridd.2021.103957
Bronfenbrenner, U. (1979). The Ecology of Human Development: Experiments by Nature and Design. Harvard University Press.
Budi, A. W. S., Junaidi, A. R., & Samawi, A. (2025). Studi literatur: Partisipasi orang tua dalam mewujudkan mutu layanan pendidikan inklusi bagi anak berkebutuhan khusus. Jurnal Ortopedagogia, 11(2), 318–321. https://doi.org/10.17977/um031v11i22025p318-321
CerebralPalsy.org. (n.d.). Parental support for children with cerebral palsy. https://www.cerebralpalsy.org/
Creswell, J. W. (2013). Qualitative inquiry and research design: Choosing among five approaches (3rd ed.). SAGE Publications.
Dunst, C. J., Trivette, C. M., & Deal, A. G. (1994). Supporting and strengthening families: Methods, strategies, and practices. Brookline Books.
Gardner, H. (1983). Frames of mind: The theory of multiple intelligences. Basic Books.
Green, S. E. (2007). “We’re tired, not sad”: Benefits and burdens of mothering a child with a disability. Social Science & Medicine, 64(1), 150–163. https://doi.org/10.1016/j.socscimed.2006.08.025
Johnson, M. (2014). A narrative inquiry into the experiences of mothers supporting children with disabilities in inclusive classrooms. University of Oregon.
Joung, W. J. (2023). Phenomenological study on the lived experiences of mothers caring for their pubescent children with developmental disabilities. Asian Nursing Research, 17(4), 226–234. https://doi.org/10.1016/j.anr.2023.09.001
King, G. A., Cathers, T., Polgar, J. M., MacKinnon, E., & Havens, L. (2000). Success in life for older adolescents with cerebral palsy. Qualitative Health Research, 10(6), 734–749. https://doi.org/10.1177/104973200129118796
Krsti?, T., Bati? O?ovaj, S., Brki? Jovanovi?, N., & Mihi?, L. (2024). Vulnerability to depression and resolution in mothers of children with cerebral palsy. Research in Developmental Disabilities, 154, 104852. https://doi.org/10.1016/j.ridd.2024.104852
Moriwaki, M., Yuasa, H., Kakehashi, M., Suzuki, H., & Kobayashi, Y. (2022). Impact of social support for mothers as caregivers of cerebral palsy children in Japan. Journal of Pediatric Nursing, 63, e64–e71. https://doi.org/10.1016/j.pedn.2021.10.010
Prayogo, M. M., Wardani, K., & Farida, H. (2023). Parental involvement in learning programs for children with special needs in Indonesia. Special and Inclusive Education Journal (SPECIAL), 4(1), 27–41. https://doi.org/10.36456/special.vol4.no1.a7125
Shattnawi, K. K., & Balbaa, E. A. (2024). Resilience and challenges: A qualitative exploration of Jordanian mothers’ experiences with children who have cerebral palsy. Journal of Pediatric Nursing, 78, e314–e322. https://doi.org/10.1016/j.pedn.2024.07.020
Smith, J. (2015). Maternal involvement in the education of children with special needs: A qualitative study. University of Toronto.
Smith, M., & Blamires, J. (2022). Mothers’ experience of having a child with cerebral palsy. A systematic review. Journal of Pediatric Nursing, 64, 64–73. https://doi.org/10.1016/j.pedn.2022.01.014
Vygotsky, L. S. (1978). Mind in society: The development of higher psychological processes.
Wahyuni, N. S., Wahyuningrum, E., & Gayatina, A. K. (2024). Pengalaman ibu dalam memberi makan pada anak cerebral palsy. Jurnal Ilmiah Keperawatan Stikes Hang Tuah Surabaya, 19(2), 153–158. https://doi.org/10.30643/jiksht.v19i2.385
Woodgate, R. L., Edwards, M., Ripat, J. D., Borton, B., & Rempel, G. (2015). Intense parenting: A qualitative study detailing the experiences of parenting children with complex care needs. BMC Pediatrics, 15, 197. https://doi.org/10.1186/s12887-015-0514-5
Copyright (c) 2026 Fransisda Tiodora Ferdiansyah, Irah Kasirah , M.Arif Taboer

This work is licensed under a Creative Commons Attribution-ShareAlike 4.0 International License.
Authors who publish with this journal agree to the following terms:
- Authors retain copyright and grant the journal right of first publication with the work simultaneously licensed under a Creative Commons Attribution-ShareAlike 4.0 International (CC-BY-SA). that allows others to share the work with an acknowledgement of the work's authorship and initial publication in this journal.
- Authors are able to enter into separate, additional contractual arrangements for the non-exclusive distribution of the journal's published version of the work (e.g., post it to an institutional repository or publish it in a book), with an acknowledgement of its initial publication in this journal.
Authors are permitted and encouraged to post their work online (e.g., in institutional repositories or on their website) prior to and during the submission process, as it can lead to productive exchanges, as well as earlier and greater citation of published work.





